family, knitting, living

It is National MS Awareness Week

March 10-17 is National MS Awareness Week.  The call from the National MS Society is …what will you do?  I read another girl’s blog and what she said was freaking genius….”I will have MS.”  Hehehehe…me too!

Seriously, I am copying a blurb from the Society’s website and asking that anyone who knows someone with MS…leave me a comment.  I find it amazing how many people know someone with MS when they think about it.  MS is generally pretty quiet.  It’s the “oh, but you look so good” disease, but think about it.  Do you know someone?  I know 4 in my family or extended family….and another 20 or so form my Nashville group.  My dad meets people all the time.  I think this is one of those seemingly silent diseases and I just want to know…..

Here’s the skinny on MS (and I do mean the skinny).  There’s a lot more to it, but you’ll get the idea:

About Multiple Sclerosis
Multiple sclerosis interrupts the flow of information between the brain and the body and stops people from moving. Every hour in the United States, someone is newly diagnosed with MS, an unpredictable, often disabling disease of the central nervous system. Symptoms range from numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are moving us closer to a world free of MS. Most people with MS are diagnosed between the ages of 20 and 50, with more than twice as many women as men being diagnosed with the disease. MS affects more than 400,000 people in the U.S. and 2.5 million worldwide.

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9 responses

  1. Anne R.

    Does President Bartlett from West Wing count? No? Then I’ll give an MS shout out to Marilyn from my yoga class.

    March 10, 2008 at 8:29 pm

  2. becca

    I know of the sister of a my favorite makeup and perfume store clerk. The sister is a nurse at the public hospital. She had a lot of trouble adopting as here in france they consider MS one of the diseases that excludes adoption. she finally, after years of trying, adopted two little brothers from mexico last year. her employers let her trade positions when she was first diagnosed so she would be in a less stressful area with a lot less “running” involved (went from ER to consultations). she is currently part time to take care of her two boys and is doing great though often tired.
    heads up in the snail mail!

    March 11, 2008 at 1:16 am

  3. Amy S.

    My dad’s cousin’s wife had MS, although she passed away a few years ago from an unrelated event. And my high school vice principal had it, too. I remember when I was very young and he was first diagnosed, I had no idea what it was. Through the years I watched his body slow down, he started to use a cane, then a walker, then a chair. His body finally succumbed several years after I graduated. He gave it a valiant fight…a fight I wouldn’t wish on anyone. Dianne, your strength is inspirational and powerful. And you’re definitely doing your part to make people more aware of this “quiet” evil disease.

    March 11, 2008 at 8:45 am

  4. A friend of mine’s mother has MS. Although I don’t know her mother personally. And I know you… 🙂 Whom I am so proud of..

    March 11, 2008 at 9:02 pm

  5. Well, I have MS (and incidentally live in Nashville!). I was diagnosed almost two months ago and since I started telling people, I have been amazed at how many folks responded by telling me they know someone else with MS. It does make me wonder if that 400,000 Americans with MS figure might be a little off!

    March 15, 2008 at 10:17 am

  6. Oh yeah, one more thing – I get my first delivery of Rebif on Tuesday. Yikes!

    March 15, 2008 at 10:18 am

  7. Martha

    My sister-in-law’s mother in Oslo, Norway, has MS. She is truly one of the most warm-hearted women I know. She is in her seventies now, but still an active grandmother to her four grandchildren.

    March 15, 2008 at 3:43 pm

  8. Hi, I apologize for the ‘form’ letter but it is the easiest way to pass word most quickly.

    I am thrilled with the response to the MS Blogger project started at my blog, Brass and Ivory. I appreciate all those who took time to post about it on their blogs. I have discovered even more bloggers who have MS, whether they blog about the MS or not. A new listing is available at MS Blogger Community Project Revised.

    Secondly, I’m looking for submissions for next week’s Carnival of MS Bloggers. Information can be found at the end of each issue archived at Carnival of MS Bloggers. What I’m looking for this week are posts related to creativity. I discovered so many new bloggers who quilt, or knit, or crochet, or write, or photograph, etc. Basically, what do you do to express yourself?

    Thank you so much for participating.

    Lisa Emrich

    P.S. I also apologize for any increased ‘spamming’ of blog comments due to my growing linklist of bloggers with MS. For that I am sincerely sorry.

    March 20, 2008 at 6:23 pm

  9. My father has Multiple Sclerosis. I grew up with M.S. as part of my family’s daily life, and it still is. My dad means the world to me; he’s so strong, and he’s my best friend on the face of the earth. He might not be able to walk or run, or swim with my brother and I, but he is always there to talk to and spend time with. He doesn’t let the disease get him down mentally, and I admire him so much.

    February 2, 2011 at 12:35 am